miércoles, 18 de septiembre de 2013

EURORDIS TV | www.eurordis.org

EURORDIS TV | www.eurordis.org

EURORDIS TV
Compelling videos from the rare disease community on EURORDIS TV
A life in the shadow - Erythropoietic Protoporphyria (EPP)
One young woman’s experience living with EPP, a photosensitivity disorder of severe burning, swelling and scarring caused by exposure to sunlight

http://www.eurordis.org/tv?vId=7147&cId=9602&wId=1811&mId=15095

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