BabysFirstTest: The Newborn Screening Clearinghouse Funds Novel Initiatives | Genetic Alliance

BabysFirstTest: The Newborn Screening Clearinghouse Funds Novel Initiatives




Washington, DC – April 5, 2011 – BabysFirstTest: The Newborn Screening Clearinghouse selected four Challenge Awardees to receive funds for innovative solutions to challenges in newborn screening (NBS) outreach, engagement, and education.

In January, the Clearinghouse announced the release of the Challenge Awards Request for Proposals (RFP). Organizations applied for up to $25,000 to fund projects that build a bridge between the Clearinghouse and existing programs, resources, and expertise in the newborn screening community. Project proposals were to be non-duplicative and nationally focused (state or condition models for broader implementation were also accepted). Applicants were asked to demonstrate promotion of community investment in NBS, and the Clearinghouse project and website in particular. The next generation of the Clearinghouse website, to be named BabysFirstTest.org, launches September 1, 2011.

“I had the opportunity to review projects that not only met the call of the RFP, but also showcased a superb utilization of an extensive network of existing resources,” said Dr. Tracy Trotter, MD, a pediatrician with San Ramon Valley Primary Care who reviewed proposals. “Applicants identified excellent synergies and have the potential for significant long-term impact.” Evaluation of submitted proposals included a comprehensive external and internal review as well as engagement of the Health Resources and Services Administration, which funds the Clearinghouse and numerous NBS initiatives.

“We recognize that the projects proposed by the Awardees exist in the context of many complementary initiatives,” said Natasha Bonhomme, Genetic Alliance vice president of strategic development and project director for the Clearinghouse. “In addition to developing much-needed resources and engaging high priority communities, the Clearinghouse promotes collaboration among NBS stakeholders. This inclusiveness will be a fundamental measure of success for the Awardees.”

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BabysFirstTest: The Newborn Screening Clearinghouse Funds Novel Initiatives | Genetic Alliance