Under the skin: life with epidermolysis bullosa 6 April 2026

https://rarerevolutionmagazine.com/under-the-skin-life-with-epidermolysis-bullosa/ With personal insights from across the world, highlighting the everyday experiences of those living with epidermolysis bullosa, discover how global DEBRA groups are working hard to build connections, increase awareness and address stigmas to provide a better future for all in the EB community “It’s the worst disease you never heard of,” says Dané from South Africa, a reality that defines the experience of living with epidermolysis bullosa (EB).