viernes, 17 de abril de 2026

10 Minutes With Rhiannon Walls

https://www.eurordis.org/10-minutes-with-rhiannon-walls/ GIF of Rhiannon Walls and Allison Watson having a conversation, against a backdrop of plants. 10 Minutes With... Catch up on the latest episode of our 10 Minutes With series, hosted by EURORDIS’ Rhiannon Walls. In this conversation, Allison Watson, CEO of Ring20 Research & Support UK and Volunteer Awardee at the 2026 Black Pearl Awards, shares her journey from everyday family life into advocacy for ultra-rare diseases such as Ring Chromosome 20 syndrome. Together, they explore challenges in diagnosis, limited research and treatment options, and the vital role of patient-led communities and peer support.

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