Ending the diagnostic odyssey: How Europe can lead the way in rare disease diagnosis EURORDIS-Rare Diseases Europe

https://www.linkedin.com/pulse/ending-diagnostic-odyssey-how-europe-can-lead-way-rare-disease-quv2e/ For many people living with rare diseases, the hardest part of their illness isn’t the treatment. It’s the wait for a diagnosis. Symptoms appear. Appointments follow. Tests are run. Specialists are consulted. And still, for what can be years, there are no answers.