Survey launched on what helps people live with a rare or undiagnosed condition September 2025

https://www.eurordis.org/rare-barometer-survey-launch-2025/ Rare Barometer The EURORDIS Rare Barometer programme is running a survey until 16 November focused on what helps people living with a rare or undiagnosed condition and their families handle daily stress, participate in work or education, and stay socially connected. The survey is accessible worldwide in 25 languages. Take the survey now and learn more about how your own network can get involved