https://www.eurordis.org/rare-on-air/
Rare On Air
Tune in to the brand new episode of Rare On Air! In this latest instalment, Julien Poulain speaks with Nicole Faccio, a social media advocate and winner of the EURORDIS Social Media Award at the 2023 Black Pearl Awards. Nicole recounts her experiences with lymphedema, and her interactions with national healthcare systems in Puerto Rico, the UK, and other countries. She shares messages for policymakers, and describes her journey of using social media as a platform for advocacy, and how she harnesses fashion to empower herself and inspire others.
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