Last Posted: Aug 01, 2019
- Time to discuss consent in digital-data studies
Nature editorial, July 31, 2019 - A tailored approach towards informing relatives at risk of inherited cardiac conditions: study protocol for a randomised controlled trial.
van den Heuvel Lieke M et al. BMJ open 2019 Jul 9(7) e025660 - Attitudes Regarding Enrollment in a Genetic Research Project: An Informed Consent Simulation Study Comparing Views of People With Depression, Diabetes, and Neither Condition.
Kim Jane Paik et al. Journal of empirical research on human research ethics : JERHRE 2019 Jul 1556264619862467 - Consent for clinical genome sequencing: considerations from the Clinical Sequencing Exploratory Research Consortium.
Yu Joon-Ho et al. Personalized medicine 2019 Jul - Consent and Autonomy in the Genomics Era.
Horton Rachel et al. Current genetic medicine reports 2019 7(2) 85-91 - Overvaluing individual consent ignores risks to tribal participants
KS Tsosie et al, Nature Rev Genetics, July 15, 2019 - On What We Have Learned and Still Need to Learn about the Psychosocial Impacts of Genetic Testing.
Parens Erik et al. The Hastings Center report 2019 May 49 Suppl 1S2-S9 - Secondary findings from next generation sequencing: Psychological and ethical issues. Family and patient perspectives.
Houdayer F et al. European journal of medical genetics 2019 Jun 103711 - [Randomized controlled trial based on big data].
Xu L et al. Zhonghua liu xing bing xue za zhi = Zhonghua liuxingbingxue zazhi 2019 Jun 40(6) 702-706 - Clinical Genetic Testing in Endocrinology: Current Concepts and Contemporary Challenges.
Newey Paul J et al. Clinical endocrinology 2019 Jun
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