jueves, 13 de septiembre de 2018

The first Europe-wide survey on the everyday impact of rare diseases

2017_05_09_Social survey leaflet final.pdf

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The first Europe-wide survey on the everyday impact of rare diseases, conducted within the INNOVCare Project by EURORDIS survey initiative Rare Barometer Voices, found that people living with a rare disease and their carers face complex pathways to access these services.

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