miércoles, 13 de junio de 2018

47 AGA, 2018, Prague, Czech Republic – EAMDA – European Alliance of Neuromuscular Disorders Associations

47 AGA, 2018, Prague, Czech Republic – EAMDA – European Alliance of Neuromuscular Disorders Associations

EAMDA - European Alliance of Neuromuscular Disorders Associations


We are very happy to announce that EAMDA is going to organize 47th annual general assembly (AGA) in Prague, Czech Republic between 20th to 23rd September, 2018 (Clarion Congress Hotel Prague). Save the date and be with us! We are preparing extensive and extremely interesting medical and social part of the conference program. More data will be published here pretty soon.

About hosting assocciation – Muscular Dystrophy Association in the Czech Republic

Asociace muskulárních dystrofiků v ČR (Muscular Dystrophy Association in the Czech Republic, the “AMD”) which associates people affected by muscular dystrophy (the so-called myopathy) and other neuromuscular disorders is a nationwide non-government non-profit organization active in the Czech Republic. People affected by muscular dystrophy are among the most severely affected persons because many of them have to rely on the use of a wheelchair and on the help from other people with all negative consequences arising from this fact.
The AMD enforces specific interests and needs of its members. It organizes rehabilitation and educational courses, wellness and rehabilitation recovery programs, workshops, chess tournaments, etc. We co-operate with medical institutions and international associations having a similar purpose which are currently present in the majority of countries worldwide as a significant part of fight against neuromuscular disorders and their consequences. We also provide social, legal and other types of assistance to our members.
The publication of the quarterly membership magazine, ZPRAVODAJ AMD (the “AMD BULLETIN”), is an important part of AMD’s activities. It provides information to the members both about the actual AMD activities and about the findings in medical science and research of neuromuscular disorders. The magazine also brings news from abroad related to neuromuscular diseases and it forms a basis for the mutual exchange of experience and opinions of the disabled persons.
The aim of the AMD in the Czech Republic is to continuously monitor and help deal with the broad issue of people suffering from neuromuscular diseases, including children and young people. This is a highly costly activity and largely depends on public support.

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