EURORDIS BLACK PEARL AWARDS
Lenny was born with a rare congenital malformation of the esophagus called Esophageal Atresia (EA). He has other, even rarer, complex complications, has experienced life-threatening episodes and after many surgeries, he still can’t eat and lost the ability to walk. Lenny lives with his family in Southern Germany and the picture was taken in 2017.
Photographer: Nicole Traubenek (Lenny’s mother)