FDA approves new treatment for sickle cell disease First approval for this rare blood disorder in nearly 20 years

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Last Posted: Jul 07, 2017

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• FDA approves new treatment for sickle cell disease First approval for this rare blood disorder in nearly 20 years  
• Personal Foul? Many issues, from discrimination to cost, surround the NCAA requirement for sickle cell trait testing in college athletes.  
  L Biel, Genome Magazine, July 2017
• The Benefits and Challenges of Preconsent in a Multisite, Pediatric Sickle Cell Intervention Trial.  
  Nimmer Mark et al. Pediatric blood & cancer 2016 Sep 63(9) 1649-52
• Sickle Cell Disease in the Emergency Department: Confronting Barriers to Care 
• ASH Announces Upcoming Sickle Cell Disease Guidelines,  
  by Mathew Shanley, Rare DR, June 19, 2017
• Implementation of multidisciplinary care reduces maternal mortality in women with sickle cell disease living in low-resource setting.  
  Asare Eugenia Vicky et al. American journal of hematology 2017 May
• Sickle cell disease and implementation science: A partnership to accelerate advances.  
  King Allison A et al. Pediatric blood & cancer 2017 May
• Sickle Cell Disease.  
  Piel Frédéric B et al. The New England journal of medicine 2017 376(16) 1561-1573
• Sickle Cell in the Emergency Department 
• With a rapper's death, harsh spotlight falls on slow progress against sickle cell  
  S Begley, StatNews, June 21, 2017
• With a rapper’s death, harsh spotlight falls on slow progress against sickle cell  
  S Begley, StatNews, June 21, 2017
• Sickle Cell Disease 
• Genome-wide association study to identify variants associated with vaso-occlusive pain in sickle cell anemia.  
  Chaturvedi Shruti et al. Blood 2017 Jun
• Evolving locally appropriate models of care for indian sickle cell disease.  
  Serjeant Graham R et al. The Indian journal of medical research 2016 Apr 143(4) 405-13
• Paper-Based Diagnostics: Rethinking Conventional Sickle Cell Screening to Improve Access to High-Quality Health Care in Resource-Limited Settings. 
  Piety Nathaniel Z et al. IEEE pulse 8(3) 42-46
• Preferences for prenatal diagnosis of sickle-cell disorder: A discrete choice experiment comparing potential service users and health-care providers.  
  Hill Melissa et al. Health expectations : an international journal of public participation in health care and health policy 2017 May

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