lunes, 21 de noviembre de 2016

EURORDIS Members' news and announcements

EURORDIS Members' news and announcements
Eurordis, Rare Diseases Europe
The Voice of Rare Disease
Patients in Europe

MEMBERS' CORNER
 

Members’ news and announcements

EURORDIS member groups are welcome to send news and announcements to be published on this page.
Does your association have an event to communicate? Send us your news.

Get Your Happy On

Rare Diseases South Africa (RDSA) has started a social media initiative encouraging people with a rare disease, family members, loved ones and friends to post a picture about something that made them happy each day, for 100 days. Remember to hashtag #100DaysOfRare, #RareAndHappy and tag them @RarediseasesSA on their Facebook and Twitter.
More Information

Multi-national portal to provide advice and support services for the parents of children born with limb disabilities

Dysnet, the Online Dysmelia Community, has launched a multi-national portal to provide advice and support services for the parents of children born with limb disabilities: www.whatifyourbaby.org

Findacure is launching 2nd round of peer mentoring programme


November 2016

FAI VOLARE LE FARFALLE” - CHARITY SHOW & GALA DINNER

5 November 2016, Cinema Teatro Trieste, Milan, Italy, more information

Всероссийский союз пациентов сообщает о
проведении

9 -10 ноября 2016 года в Москве, VII Всероссийского Конгресса пациентов. www.patients.ru

CMTC Annual global member meeting

12 November 2016, Leidsen, Netherlands, programme

Batten Disease Family Association

18-20 November 2016, Stratford-upon-Avon, UK, programme

PWSA UK national Conference 2016 

19-20 November 2016, The Hayes Conference Centre, Swanick, Derbyshire DE55 1AU, more information

Usher Taubblind Forum Österreich -Vorweihnachtliches Treffen in Wien

26 November 2016, Restaurant "Yildiz Villa", Auhofstraße 80, 1130 Wien, nfo@usher-taubblind.at

Gala d'ALMOHA 8000 rêves d'enfants

26 Novembre 2016, Au 3 club, 3, place de Clichy, 75008 Paris, more information

December 2016

Charlas medicas sobre Ataxias

3 December, Sevilla, more information

April 2017

Run the London Marathon for AKU

23 April 2017, London, UK, more information

July 2017

3rd World CDG Conference

15-16th July 2017, Leuven, Belgium, more infromation

September 2017

International Ataxia Research Conference

27-30 September 2017, Pisa, Italy, iarc2017@eurotraining.it



This page is reserved for news, events & announcements concerning Eurordis’ member organisations.

To submit your announcement, e-mail:
Anja Helm
Manager of Relations with Patient Organisations
anja.helm@eurordis.org


Cette page est réservée aux actualités, événements et annonces des membres d’Eurordis.

Merci d’envoyez votre annonce à:
Anja Helm
Manager of Relations with Patient Organisations
anja.helm@eurordis.org
 


Esta pagina esta reservada para anuncios y acontecimientos de los miembros d’Eurordis.

Por favor, mande su anuncio por e-mail a:
Anja Helm
Senior Manager of Relations with Patient Organisations
anja.helm@eurordis.org



Diese Seite ist für Nachrichten, Ereignisse und Anzeigen von Eurordis Mitgliedern.

E-mail
Anja Helm
Senior Manager of Relations with Patient Organisations
anja.helm@eurordis.org

Esta página está reservada a notícia

s, acontecimentos e anúncios relativos às organizações associadas da EURORDIS.

Envie o seu anúncio por correio electrónico para
Anja Helm
Responsável pelas Relações com as Organizações de Doentes da EURORDIS
anja.helm@eurordis.org


Questa pagina è riservata a notizie, eventi e avvisi di attività organizzate dai membri di EURORDIS.

Per presentare il vostro annuncio:

Indirizzo e-mail:
Anja Helm
Direttrice delle relazioni con le Organizzazioni di Pazienti
anja.helm@eurordis.org

Page created: 03/12/2009
Page last updated: 16/11/2016

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