The Voice of Rare Disease
Patients in Europe
EURORDIS Training Resources Centre
"Empowering Patients, Inspiring Action"
The Centre’s training programme and resources are designed to strengthen the capacity of rare disease patient representatives. Training helps to empower patient representatives to advocate effectively for rare diseases at both local and international levels.
The training programme employs a blended learning approach of different online formats as well as face-to-face training. All content is freely available to anyone with an interest in patient advocacy. They can be used at a time and place that is convenient for both Patients and Carers. The content is organised by themes. We suggest completing the programme in the following order: 1) Medical Research, 2) Ethics, 3) Regulatory Framework, 4) European Medicines Agency, 5) Benefit-Risk Assessment & Pharmacovigilance, 6) Market Access 7) Other Patient Related Content.
The Summer School section provides information on how to apply to attend the annual 4.5-day full-immersion face-to-face training course on medical research, development, and regulation as well as product safety, market access for patient experts and researchers.
The conditions of use for all EURORDIS Training Modules have been licensed with Creative Commons.More information on the conditions of use.