A service of the U.S. National Library of Medicine
National Institutes of Health
Caregivers provide help to another person in need. The person receiving care may be an adult - often a parent or a spouse - or a child with special medical needs. Some caregivers are family members. Others are paid. They do many things:
- Shop for food and cook
- Clean the house
- Pay bills
- Give medicine
- Help the person go to the toilet, bathe and dress
- Help the person eat
- Provide company and emotional support
Caregiving is hard, and caregivers of chronically ill people often feel stress. They are "on call" 24 hours a day, 7 days a week. If you're caring for someone with mental problems like Alzheimer's disease it can be especially difficult. Support groups can help.
Dept. of Health and Human Services Office on Women's Health
MEDICAL ENCYCLOPEDIA
National Institutes of Health
- The primary NIH organization for research on Caregivers is theNational Institute on Aging
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- MedlinePlus links to health information from the National Institutes of Health and other federal government agencies. MedlinePlus also links to health information from non-government Web sites. See ourdisclaimer about external links and our quality guidelines.
Start Here
- Caregiver Health and Wellness(American Academy of Family Physicians)
- Also available in Spanish
Overviews
- Caregiver Stress(Department of Health and Human Services, Office on Women's Health)
- Caregivers and Serious Illness(Administration for Community Living) - PDF
- JAMA Patient Page: Caregiver Support(American Medical Association) - PDF
Latest News
- 'Informal Care' for Older Americans Tops $500B Annually, Study Finds(10/30/2014, HealthDay)
Coping
- Caregivers and Exercise -- Take Time for Yourself(National Institute on Aging) -PDF
- Caring for the Caregiver(National Cancer Institute)
- Also available in Spanish
- Coping Checklist for Caregivers(American Cancer Society)
- Finding More Help (Long Distance Care-Giving)(National Institute on Aging)
- Help for the Caregiver(National Cancer Institute)
- Respite Care(Administration on Aging)
- Taking Care of You: Self-Care for Family Caregivers(Family Caregiver Alliance)
- What Is Caregiver Burnout?(American Heart Association) - PDF
Specific Conditions
- Caring for the Elderly: Dealing with Resistance(Mayo Foundation for Medical Education and Research)
- Dental Care Every Day: A Caregiver's Guide(National Institute of Dental and Craniofacial Research)
- Dying Process--A Guide for Family Caregivers(National Hospice and Palliative Care Organization) - PDF
- Families with Special Needs: Caregiving Tips(Centers for Disease Control and Prevention)
- Family Caregivers and Driving Retirement: Tips for Planning Ahead (Healthy Living Tips)(Administration for Community Living) - PDF
- Family Caregivers and Transportation: A Few Survival Tips (Healthy Living Tips)(Administration for Community Living) - PDF
- Family Caregivers in Cancer (PDQ)(National Cancer Institute)
- Also available in Spanish
- Guide for Caregivers(National Multiple Sclerosis Society) - PDF
- Also available in Spanish
- Hospital Discharge Planning: A Guide for Families and Caregivers(Family Caregiver Alliance)
- How to Protect Yourself(AIDS.gov)
- MDA ALS Caregiver's Guide(Muscular Dystrophy Association)
- Protecting Your Older Loved One from a Fall(Administration on Aging)
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Related Issues
- Adult Day Care(Administration on Aging)
- Alternatives to Nursing Homes(Centers for Medicare & Medicaid Services)
- Busy Parents and Caregivers Must Care for Themselves(American Heart Association)
- Caregiving(Centers for Medicare & Medicaid Services)
- Caregiving and Sibling Relationships: Challenges and Opportunities(Family Caregiver Alliance)
- Face the Facts(Administration on Aging)
- Guidelines for Better Communication with Brain Impaired Adults(Family Caregiver Alliance)
- Hands-On Skills for Caregivers(Family Caregiver Alliance)
- Hot Weather Tips(Family Caregiver Alliance)
- How to Assemble a Caregiving Team(Fisher Center for Alzheimer's Research Foundation)
- Improving Doctor/Caregiver Communication(Caregiver Action Network) - PDF
- Information Caregivers Can Use on: Speaking with a Friend or Family Member's Doctor During an Office Visit(Centers for Medicare & Medicaid Services) - PDF
- Information for Caregivers(American Health Information Management Association)
- LGBT Caregiver Concerns(Alzheimer's Association) - PDF
- LGBT Caregiving: Frequently Asked Questions(Family Caregiver Alliance)
- Long-Distance Caregiving -- A Family Affair(National Institute on Aging)
- Long-Distance Caregiving -- Getting Started(National Institute on Aging)
- Making Choices about Everyday Care (for Families)(Family Caregiver Alliance)
- Managing Care for Adults with Long-Term Medical Illness(Agency for Healthcare Research and Quality)
- Also available in Spanish
- Medicare and Caregivers: Illness and Hospitilization(National Institute on Aging)
- Medicare and Caregivers: Planning for Medical Care(National Institute on Aging)
- Roles for the Family Caregiver(National Cancer Institute)
- So Far Away: Twenty Questions for Long-Distance Caregivers(National Institute on Aging)
- Support for Long-Distance Caregivers(National Institute on Aging)
- What Are the Caregiver's Rights?(American Heart Association) - PDF
- What If I Don't Want to Be the Caregiver?(American Cancer Society)
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Financial Issues
- Managing Someone Else's Money: Help for Agents under a Power of Attorney(Consumer Financial Protection Bureau) - PDF
- Managing Someone Else's Money: Help for Court-Appointed Guardians of Property and Conservators(Consumer Financial Protection Bureau) - PDF
- Managing Someone Else's Money: Help for Trustees under a Revocable Living Trust(Consumer Financial Protection Bureau) - PDF
- Medicare and Caregivers: Understanding Medicare Billing(National Institute on Aging)
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Clinical Trials
- ClinicalTrials.gov: Caregivers(National Institutes of Health)
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Journal Articles
References and abstracts from MEDLINE/PubMed (National Library of Medicine)Dictionaries/Glossaries
- Glossary(Beth Israel Medical Center, Department of Pain Medicine and Palliative Care)
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Directories
- AAAs/ Title VI Agencies (Area Agencies on Aging)(National Association of Area Agencies on Aging)
- Community Resource Finder(Alzheimer's Association)
- Family Care Navigator: State-by-State Help for Family Caregivers(Family Caregiver Alliance)
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Organizations
Newsletters/Print Publications
- Connections(Family Caregiver Alliance)
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Law and Policy
- Legal Issues for LGBT Caregivers(Family Caregiver Alliance)
- Medicare Basics: A Guide for Families and Friends of People with Medicare(Centers for Medicare & Medicaid Services) - PDF
- National Family Caregiver Support Program(Administration on Aging)
- Planning Ahead - Health, Legal, and Financial Issues(National Institute on Aging)
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Statistics
- Caregiving Statistics(Caregiver Action Network)
- Selected Caregiver Statistics(Family Caregiver Alliance)
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Children
- Caring for a Seriously Ill Child(Nemours Foundation)
- Also available in Spanish
- Managing Home Health Care (For Parents)(Nemours Foundation)
- Also available in Spanish
- Taking Care of You: Support for Caregivers(Nemours Foundation)
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Seniors
- Caregiver Stress and Elder Abuse(National Center on Elder Abuse) - PDF
- Also available in Spanish
- Caregivers' Guide to Medications and Aging(Family Caregiver Alliance)
- Community-Based Care(AGS Foundation for Health in Aging)
- Eldercare at Home: Caregiving(AGS Foundation for Health in Aging)
- Eldercare at Home: Helping with Recovery from Illness(AGS Foundation for Health in Aging)
- Eldercare at Home: Problems of Daily Living(AGS Foundation for Health in Aging)
- Home Care(AGS Foundation for Health in Aging)
- Ten Things to Look for in a Senior-Friendly Emergency Room(AGS Foundation for Health in Aging) - PDF
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Patient Handouts
- Bathing a patient in bed
- Also available in Spanish
- Moving a patient from bed to a wheelchair
- Also available in Spanish
- Pulling a patient up in bed
- Also available in Spanish
- Turning patients over in bed
- Also available in Spanish
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