Leigh Syndrome, the Community - RareConnect
Welcome - Leigh Syndrome Community
What is Leigh Syndrome ?
Leigh syndrome is a rare genetic neurometabolic disorder that is characterized by the degeneration of the central nervous system.
Source: UMDFLeigh Syndrome Resources
by RareConnect team published 13 days ago 2 comments
Campbell is our third child and was born after a trouble-free pregnancy, apparently healthy. However, at the age of eight weeks he suffered a fit a...
by yobanapaolabernalmendoza published 14 days ago No comment
My eldest son was called Arturito and died of the rare disease called Leigh Syndrome. After losing my eldest son, my daughter Abby was born shortly...
Partners and Patient Groups
RareConnect is a joint venture of EURORDIS and NORD. The following patient groups are official partners of this community.
No hay comentarios:
Publicar un comentario