Genomics|Update|Current: Ethics & Law

Genomics|Update|Current

The Office of Public Health Genomics (OPHG) provides updated and credible information on how genomic
information and family health history can improve health and influence policy and practice. We highlight
news and information on the use of genomic tests and other applications, including family health history,
in clinical and public health practice and programs, along with relevant data, policy, and legislation. We hope the update is informative to practitioners, policy makers, consumers, and researchers. Please send
your comments to: genetics@cdc.gov

Ethics & Law

• Pervasive sequence patents cover the entire human genome.
  Jeffrey Rosenfeld and Christopher E Mason. Genome Medicine, Mar 2013
  
  
  • You don't 'own' your own genes: researchers raise alarm about loss of individual 'genomic liberty' due to gene patents, ScienceDaily, Mar 25


• Next-generation sequencing: does the next generation still have a right to an open future?
  Annelien L. Bredenoord, et al, Nature Reviews Genetics, Mar 2013


• Current consent forms for the personal genome project


• Sequencing of HeLa genome revives genetic privacy concerns, NPR News, March 26


• Privacy and the HeLa Genome-European scientists have taken down the HeLa genome after publishing it without the consent of Henrietta Lacks’s family. By Kate Yandell, The Scientist, Mar 26


• House bill introduced to reauthorize newborn screening programs, SACHDNC, Genome Web, Mar 22 [by free subscription only]


• Are gene patents standing in the way of personalized medicine? By Amy Maxmen, PBS, Mar 19