National Amyotrophic Lateral Sclerosis (ALS) Registry

National ALS Registry Alert: ALS Research Notification

The National ALS Registry website has been updated. ATSDR is helping PALS and researchers connect. To learn more about ALS Research Notification, please click the More Information link.

Welcome to ATSDR’s National Amyotrophic Lateral Sclerosis (ALS) Registry website. This site allows Persons with ALS (PALS) the opportunity to enroll in the National ALS Registry. We welcome visitor feedback as we continue to improve this site.

Why should I join the National ALS Registry?
The goal of the National ALS Registry is to collect information to help scientists learn more about ALS. To get the best information, it is important to get as many PALS as possible to take part. Although you will not directly benefit from taking part in the National ALS Registry, your information could help PALS in the future. We hope that after you learn more about the National ALS Registry you will decide to join.