Understand
Living with a rare disease
Meet
Connect and discuss with other patients
Learn
Get information and find resources
Welcome!
Hosted by trusted patient advocates, this is a place where rare disease patients can connect with others globally. Come in and learn more >
Our Communities
Find an online community for your area of interest. Meet, interact and learn from your peers and medical experts. We have 27 rare disease communities with more to come soon!
Select your communityJoin RareConnect
Meet and interact with others who share your condition in a supportive and friendly environment. Find the information and support you need and share your own experiences.
Join now
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