Check out latest International rare disease events from our members
The Chromosome 18 Registry & Research Society Europe is organising its Second Family Conference in Milan on 3-5 August, 2012
Chromosome 18 Europe
Chromosome 18 Europe
Written by Bonnie McKerracher |
Saturday, 23 June 2012 14:08 |
Latest version of the proposed schedule as at 23rd July 2012.
Feel free to leave comments below.
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Last Updated on Sunday, 24 June 2012 11:03 |
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European Conference 2012 Booking Form | | | |
Written by Tony Russell |
Thursday, 31 May 2012 14:13 |
At long last, the 2012 Conference booking form is online here.
If you fill out the form and click Submit, it will be emailed to us.
We'll pick it up and acknowledge receipt.
If you need extra lines, just submit additional forms.
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Last Updated on Thursday, 31 May 2012 22:01 |
European Conference 2012, Milan, Italy. | | | |
Written by Tony Russell |
Tuesday, 03 April 2012 18:52 |
Over the next few days, we'll be publishing details of the European Conference 2012 in Milan.
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Mark To Run The Entire Length Of Hadrians Wall | | | |
Written by Mark Kirkham |
Sunday, 20 May 2012 21:24 |
My son, James, has 18q- and Nystagmus. On 23-24 June 2012, I will be raising money for the charities that have helped us all so much as we have come to terms and learned to cope with his conditions - our very own C18RRSE, and the Nystagmus Network.
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Last Updated on Sunday, 20 May 2012 21:41 |
GEORGE AND MATTHEW - CHROMOSOME RING 18 CHARITY WALK UP SNOWDON | | | |
Written by Administrator |
Tuesday, 27 March 2012 13:16 |
On 14th April 2012, there are 100+ people meeting at Mount Snowdon, to take part in a sponsored climb up Snowdon. We are all walking up the Llanberis route as we find this is a steady climb! We have organised this walk to raise awareness of Chromosome 18 Registry Europe and also to raise funds to support the charity in order to help affected children and their families find answers through research and each other!! |
Last Updated on Tuesday, 27 March 2012 13:35 |
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