The invisible struggle: charting the complex reality of CIDP 8 July 2026

https://rarerevolutionmagazine.com/the-invisible-struggle-charting-the-complex-reality-of-cidp/ Chronic inflammatory demyelinating polyneuropathy (CIDP) is a rare, fluctuating autoimmune condition that attacks the peripheral nerves, causing progressive muscle weakness, sensory loss and an often ‘invisible’ struggle. While clinical metrics track measurable symptoms like muscle strength, the real measure of life with CIDP lies in the daily unpredictability and emotional toll of a condition that few can understand. Global patient leaders Gabi Faust, Jean-Philippe Plançon, Marian Ciopec and Nancy Di Salvo, chart a course through the diagnostic odyssey and beyond Written by Nicola Miller, RARE Revolution Community insights from Gabi Faust, chair, GBS CIDP Self-Help Organisation Jean-Philippe Plançon, president, EPODIN (European Patients Organization for Dysimmune and Inflammatory Neuropathies) Marian Ciopec, executive manager, EPODIN Nancy Di Salvo, international affairs director, GBS-CIDP Foundation International