Starting a patient organisation ++

https://pierrerobineurope.com/ The EURORDIS member organisation Pierre Robin Europe have published a new article, providing easy-to-follow, practical advice on setting up a rare disease patient organisation. From launching a group on Facebook to building a website, this article offers all the information you need to create a successful rare disease patient organisation. https://pierrerobineurope.com/how-to-build-a-rare-disease-patient-organization/