From Evidence to Action: Closing the Mental Health Gap in Rare Disease Care July 2026

https://www.eurordis.org/from-evidence-to-action-closing-the-mental-health-gap-in-rare-disease-care/ The latest rare barometer survey revealed an alarming mental health crisis within the rare disease community, showing that 68% of people impacted by a rare disease suffer from poor mental health. With responses from nearly 9,900 individuals across the rare disease community, the survey highlighted how the levels of distress that they experience are comparable to those seen during the COVID-19 pandemic or amongst highly vulnerable populations. Our latest article dives into the survey results; identifies key gaps in psychological support for people living with a rare disease and their families; and underlines why mental health support must be better integrated into the rare disease care pathway. Practical solutions for real challenges: our ECRD 2026 Poster Pitch winners June 2026 https://www.eurordis.org/ecrd-2026-poster-pitch-winners/