EURORDIS welcomes European Parliament draft report calling for a European Action Plan on Rare Diseases March 2026

https://www.europarl.europa.eu/doceo/document/SANT-PR-785192_EN.pdf EURORDIS welcomes European Parliament draft report calling for a European Action Plan on Rare Diseases March 2026 5 March 2026, Brussels – EURORDIS–Rare Diseases Europe welcomes the draft report presented by MEP Nicolás González Casares, Member of the European Parliament Committee on Public Health (SANT), calling on the European Commission to propose legislation establishing a European Rare Disease Action Framework. https://www.eurordis.org/response-draft-proposal-for-action-plan/ Earlier this month, Nicolás González Casares, Member of the European Parliament Public Health (SANT) Committee, presented to the Committee a draft report urging the European Commission to legislate for a European Action Plan. "We are very happy with this draft report," responded Valentina Bottarelli, our Head of Policy & Public Affairs. "The scale of the challenge demands a coordinated European approach."