The Journey of European Reference Networks

https://www.eurordis.org/rare-on-air/ Rare Disease Day bonus series Get ready for Rare Disease Day by tuning into our Rare on Air Stories bonus series, where we highlight the lived experiences of people impacted by rare diseases across the globe. In the latest episode, Jessa shares how she has achieved remarkable milestones despite the challenges of chronic illness. You can also hear Ken's story, which offers a clear, grounded look at family, responsibility, and the resilience that grows quietly over years of caregiving. Christine also reflects on her perseverance following a life-threatening health crisis. https://www.rarediseaseday.org/