sábado, 31 de enero de 2026

Building global consensus: Why unified terminology matters for childhood dementia and all rare diseases

Building global consensus: Why unified terminology matters for childhood dementia and all rare diseases January 2026 The Member Comment article below was shared with EURORDIS-Rare Diseases Europe by Kris Kusidlo, Chairman of our member organisation Sanfilippo Initiative, and Community Representative of the Global Childhood Dementia Consensus Project Steering Committee. https://www.eurordis.org/why-unified-terminology-matters-for-childhood-dementia/

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