Our story: Losing our daughter to vascular Ehlers–Danlos Syndrome (vEDS) October 2025

Our story: Losing our daughter to vascular Ehlers–Danlos Syndrome (vEDS) October 2025 One year after the passing of his daughter Janine, Wim Feenstra shares a moving account of Janine’s experience with Vascular Ehlers–Danlos syndrome (vEDS). https://www.eurordis.org/losing-our-daughter-to-vascular-ehlers-danlos-syndrome-veds/