Why this moment must be a turning point for rare disease policy

https://www.theparliamentmagazine.eu/partner/article/why-this-moment-must-be-a-turning-point-for-rare-disease-policy Writing for The Parliament Magazine, our Chief Executive Officer Virginie Bros-Facer discusses how the current Danish Presidency of the Council of the EU can mark a turning point for rare disease policymaking. "The frameworks are emerging," writes Virginie. "What we need now is political will and commitment – starting with stronger national delivery and clear, binding direction at EU level."