A European Rare Neuromuscular Diseases Registry Hub +...

A European Rare Neuromuscular Diseases Registry Hub Rare diseases are characterised by a shortage of patients and expertise. Providing the best care requires shared cross-border expertise and data exchange. A registry hub is best for bridging siloed patient information resources for rare neuromuscular diseases. https://communities.springernature.com/posts/a-european-rare-neuromuscular-diseases-registry-hub