Training, Connecting, Leading: Getting involved with the Open Academy programme

Training, Connecting, Leading: Getting involved with the Open Academy programme September 2025 It’s one of the paradoxes of rare disease advocacy: while science is advancing at an unprecedented pace – with breakthroughs in gene therapies, data-driven diagnostics, and AI-powered discovery – for people living with a rare disease, real progress in healthcare and daily life can remain frustratingly slow. https://www.eurordis.org/getting-involved-open-academy-programme/