Survey launched on what helps people live with a rare or undiagnosed condition September 2025 (until 16 November 2025)

Survey launched on what helps people live with a rare or undiagnosed condition September 2025 11 September 2025, Paris – Rare Barometer, the survey initiative of EURORDIS–Rare Diseases Europe, has today launched a new global survey exploring what helps people live with a rare or undiagnosed condition, as well as their families. https://www.eurordis.org/rare-barometer-survey-launch-2025/