Survey launched on what helps people live with a rare or undiagnosed condition

Survey launched on what helps people live with a rare or undiagnosed condition September 2025 11 September 2025, Paris – Rare Barometer, the survey initiative of EURORDIS–Rare Diseases Europe, has today launched a new global survey exploring what helps people live with a rare or undiagnosed condition, as well as their families. https://www.eurordis.org/rare-barometer-survey-launch-2025/ Rare Barometer Until 16 November, the EURORDIS Rare Barometer progamme is running a new survey focused on what helps people live with a rare or undiagnosed condition, as well as their families. The survey is accessible worldwide in 25 languages. Take the survey now and learn more about how your rare disease community can get involved.