#ActRare2024: What progress must the EU make on rare diseases? March 2024

https://www.eurordis.org/actrare2024-what-progress-must-eu-make/ Last month on Rare Disease Day, 29 February 2024, EURORDIS launched the Championing the Rare (#ActRare2024) campaign, which is urging the EU's future policymakers to enact policies improving the lives of Europeans living with a rare disease. Ahead of the June 2024 European Parliament elections and the subsequent European Commission appointments, our #ActRare2024 campaign is urging the next set of EU policymakers to prioritise rare diseases and pledge substantial policy advancements in eight critical areas. We are inviting everyone – from individuals to organisations – to rally together in support of our campaign by sharing our campaign resources and using the hashtag #ActRare2024 on social media. Our latest article outlines the eight key policy calls of our campaign, the commitments we are seeking from EU officials, and the ways in which anyone can support the campaign!