Living Life to the Full – Life with Kearns Sayre syndrome

https://www.eurordis.org/life-with-kearns-sayre/ This week, we published an article telling Victor Valkov's story. Viktor is 22, living in Bulgaria with Kearns Sayre syndrome, yet does not let this impact his outlook on life. Viktor diligently follows his mito cocktail regimen, primarily consisting of supplements and vitamins, while doing physiotherapy five times a week and swimming each weekend. He knows that his efforts have long-term benefits and tries hard to complete his daily tasks as best as he can. Read more stories from our community. Would you like to share your story with us about life with a rare disease to support our Community article series? Contact Rhiannon Walls, our Communications Junior Manager, at rhiannon.walls@eurordis.org.