Measuring how living with a rare disease impacts our mental health

https://www.mhe-sme.org/measuring-how-living-with-a-rare-disease-impacts-our-mental-health/ Mental health and living with NF1 Claas Röhl, the father of a daughter with Neurofibromatosis Type 1 (NF1), has written for Mental Health Europe about the specific mental health strains of a rare disease on individuals and their families. NF1 is a genetic disorder that causes tumours to grow along nerves, and Claas is the President of NF Kinder, an organisation committed to improving the lives of people with the condition. NF Kinder have also recently launched their campaign, 'The Many Faces of the NF', which is raising awareness of NF1 and features people living with the condition, their relatives, and their doctors.