sábado, 23 de septiembre de 2023
September is….Leukodystrophy Awareness Month
https://alextlc.org/september-is-leukodystrophy-awareness-month/
Leukodystrophy Awareness Month takes place every year throughout September, and aims to spread awareness of everyone affected by leukodystrophy. Leukodystrophy refers to the group of rare genetic disorders characterised by the progressive degeneration of white matter in the brain, leading to neurological and motor dysfunction. Leukodystrophy Awareness Month provides an opportunity to raise awareness of leukodystrophy, including the symptoms of leukodystrophy, the impact of the condition on individuals and families.
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