The Voice of Rare Disease
Patients in Europe
Overview of National Rare Disease Policies
Find out about the political landscape of rare diseases across Europe and rare disease National Plans
Guidance Documents for National Plans
Essential documents for establishing national plans.
EUROPLAN – EURORDIS Tool Kit for National Conferences
Provides necessary information and guidance documents for organising a EUROPLAN National Conference.
The EUROPLAN Project
Started in 2008, this EU project supports national strategies and plans for rare diseases in Member States and other European countries.
EUROPLAN National Conferences 2012-2015
Find out where EUROPLAN National Conferences 2012-2015 are taking place in Europe
Reports of EUROPLAN National Conferences 2012-2015
The EUROPLAN National Conference reports summarise national discussions around rare disease policy in the context of European guidelines and identify bottlenecks and actions to be taken to improve care and services for patients
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