jueves, 13 de septiembre de 2018

Rare Disease Policy | www.eurordis.org

Rare Disease Policy | www.eurordis.org

Eurordis, Rare Diseases Europe

The Voice of Rare Disease
Patients in Europe



Overview of National Rare Disease Policies

Find out about the political landscape of rare diseases across Europe and rare disease National Plans
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Guidance Documents for National Plans

Essential documents for establishing national plans.
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EUROPLAN – EURORDIS Tool Kit for National Conferences

Provides necessary information and guidance documents for organising a EUROPLAN National Conference.
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The EUROPLAN Project

Started in 2008, this EU project supports national strategies and plans for rare diseases in Member States and other European countries.
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EUROPLAN National Conferences 2012-2015

Find out where EUROPLAN National Conferences 2012-2015 are taking place in Europe
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Reports of EUROPLAN National Conferences 2012-2015

The EUROPLAN National Conference reports summarise  national discussions around rare disease policy in the context of European guidelines and identify bottlenecks and actions to be taken to improve care and services for patients
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