domingo, 21 de julio de 2013

CDC - Links to Other Websites, Autism Spectrum Disorders - NCBDDD

CDC - Links to Other Websites, Autism Spectrum Disorders - NCBDDD

Links to Other Websites


100 Days Kit, Autism SpeaksExternal Web Site Icon
This kit provides information to help families get through the first steps of an autism diagnosis.

A Parent’s Guide to Evidence-Based Practice and Autism Adobe PDF fileExternal Web Site Icon
This manual from the National Autism Center aims to assist parents as they make difficult decisions about how best to help their children with autism spectrum disorders reach their full potential.

PublicationsAutism Source, Autism Society of America (ASA)External Web Site Icon
ASA’s Autism Source is a database of resources in local communities. It includes contact information for ASA chapters and other local supports.

Autism NOWExternal Web Site Icon
Autism Now is an initiative of The Arc and The Administration on Developmental Disabilities. This national autism resource and information center is a central point of resources and information for individuals with Autism Spectrum Disorders (ASD) and other developmental disabilities, their families, and other key stakeholders.

Autism Wandering Awareness Alerts Response Education (AWAARE)External Web Site Icon
Working to prevent wandering incidents and deaths within the autism community.

Department of EducationExternal Web Site Icon
The Department of Education (ED) has resources to assist with the educational needs of children with autism spectrum disorders and other disabilities. The ED’s Special Education Technical Assistance and Dissemination NetworkExternal Web Site Icon links to a variety of websites and online resources that focus on special education issues, such as policy, technology, curriculum, and parent trainings. In addition, the Office of Special Education and Rehabilitative ServicesExternal Web Site Icon (OSERS) within the ED has resources for parents and individuals, school districts, and states in the areas of special education, vocational rehabilitation, and research.

Life Journey Through Autism Series, Organization for Autism Research (OAR)External Web Site Icon
OAR has published five Life Journey guidebooks and The Best of The OARacle to date. You can read their descriptions, preview each online, or download copies at no cost. Most are available in Spanish.
  • A Parent's Guide to Assessment
    This guide helps parents understand the assessment process and learn how to use assessment results to improve their child's services.
  • A Parent’s Guide to Research
    This guide helps parents find, understand, and evaluate autism research studies.
  • A Guide for Transition to Adulthood
    This guide provides an overview of the transition from school to adulthood.

External Web Site Icon
Mental Health Services Locator, National Mental Health Information CenterExternal Web Site Icon 
The Mental Health Services Locator helps families and professionals find information about mental health services and resources by state and/or region. The National Mental Health Information Center is part of the Substance Abuse and Mental Health Services Administration of the Department of Health and Human Services.

Operation Autism for Military FamiliesExternal Web Site Icon
Operation Autism is a web-based resource specifically designed and created to support military families that have children with autism. It is from the Organization for Autism Research (OAR) and the American Legion Child Welfare Foundation.

School Accreditation, National Association for the Education of Young Children (NAEYC)External Web Site Icon
NAEYC provides accreditation for schools that meet certain standards, as well as resources, tools, and information for families and childcare providers.

State Programs, National Dissemination Center for Children with DisabilitiesExternal Web Site Icon (NICHCY)
Locate organizations and agencies within each state that address disability-related issues. NICHCY has compiled a resource directory by stateExternal Web Site Icon that lists key programs for children with developmental disabilities and their families. The lists include state agencies serving children and youth with disabilities, state chapters of disability organizations and parent groups, and parent training and information projects.

Financial Resources for Health Care
Photo: Child with motherChildren’s Health Insurance ProgramExternal Web Site Icon
Insure Kids Now! is a national campaign to link the nation's 10 million uninsured children--from birth to age 18--to free and low-cost health insurance. It is sponsored by the Department of Health and Human Services. Each state has a Children's Health Insurance Program that provides free or low-cost health insurance for eligible children. The website has basic facts about these programs as well as links to every state’s programExternal Web Site Icon for children. The site also has information on where you can learn who is eligible for the program, how to apply, and what services are covered. You can get information in English and Spanish. En Español: ¡Asegure a sus Hijos Ahora!External Web Site Icon | El Programa de su EstadoExternal Web Site Icon

GovBenefits.govExternal Web Site Icon is a partnership of Federal agencies with a shared vision - to provide improved, personalized access to government assistance programs. This website can help you determine if there are government benefits you can receive.

MedicaidExternal Web Site Icon
Medicaid is a federal program that helps certain groups of people pay for medical care. Each state regulates its own Medicaid program, so the rules may be slightly different state-to-state. To get information, contact the Medicaid office in your state.

The Arc Medicaid Reference DeskExternal Web Site Icon
The Medicaid Reference Desk is a tool to help people with intellectual and developmental disabilities find out what Medicaid can offer them. It is a project of The Arc and the Administration on Developmental Disabilities.

Social Security Benefits
External Web Site Icon

This booklet is for the parents, caregivers or representatives of children under age 18 who have disabilities that might make them eligible for Supplemental Security Income (SSI) payments. It is also for adults who became disabled in childhood and who might be entitled to Social Security Disability Insurance (SSDI) benefits. (SSDI benefit is called a "child’s" benefit because it is paid on a parent’s Social Security earnings record.)

Sound Advice on AutismExternal Web Site Icon
To answer parents' questions about autism spectrum disorders, the American Academy of Pediatrics (AAP) offers a collection of interviews with pediatricians, researchers and parents.

Special Needs Trust/Estate PlanningExternal Web Site Icon
Plan ahead for your child’s financial future by writing a specialized will and preparing other documents that will help your child access his or her government benefits when you are gone.

Disaster Planning
AutismCaresExternal Web Site Icon 
A growing number of national autism organizations partnered to form AutismCares, a national initiative to help families with members who have autism that are challenged with disasters in their community. AutismCares registers families through a free online service to help manage and store their health care records and ensure that trained case managers are able to locate them more effectively in case disaster strikes their community.

Assistive Technology
People who have an autism spectrum disorder may use assistive technology (AT). AT is any item that helps people do things in their daily lives. Examples of AT devices include a keyguard that helps children find the right keys on a computer keyboard, a simpler remote control for a TV or stereo, an adapted mouse that makes getting around on the computer easier, switches that help children play with toys, and talking books.

Assistive Devices, MEDLINEplusExternal Web Site Icon
MEDLINEplus is an online service of the National Library of Medicine and the National Institutes of Health. Updated daily, the site offers information on a range of health topics, including autism and assistive devices, in EnglishExternal Web Site Icon and Spanish (En Español)External Web Site Icon.

Technical Assistance ProjectExternal Web Site Icon
The Technical Assistance Project is sponsored by the Rehabilitation Engineering and Assistive Technology Society of North America (RESNA)External Web Site Icon, funded by the U.S. Department of Education. The project reduces barriers and increases access to assistive technology (AT) devices and services for people with disabilities of all ages. Visit the project’s website to find an assistive technology program in your state or territoryExternal Web Site Icon.

Healthcare Providers

Screening and Diagnosis
Photo: physician listening to toddlerCaring for Children With Autism Spectrum Disorders: A Resource Toolkit for CliniciansExternal Web Site Icon
A clinical resource to assist in the recognition, evaluation, and ongoing management of autism spectrum disorders throughout the patient’s lifespan from the American Academy of Pediatrics (AAP).

Developmental Screening/Testing Coding Adobe PDF file
This fact sheet for primary care pediatricians provides guidance on how to appropriately report limited and extended developmental screening and testing services from American Academy of Pediatrics (AAP).

Developmental Screening Tools Adobe PDF fileExternal Web Site Icon
A list of developmental screening tools, both general and specific to autism. Find descriptions of the tools, including sensitivity and specificity.

Diagnostic and Statistical Manual of Mental DisordersExternal Web Site Icon
The Diagnostic and Statistical Manual of Mental Disorders (DSM), published by the American Psychiatric Association, is the standard classification of mental disorders used by mental health professionals in the United States.

Identification and Evaluation of Children With Autism Spectrum Disorders Adobe PDF fileExternal Web Site Icon
Detailed information on signs and symptoms so pediatricians can recognize and assess ASDs in their patients from American Academy of Pediatrics (AAP).

The International Classification of Diseases
The International Classification of Diseases, Ninth Revision, Clinical Modification (ICD-9-CM) is the official system of codes for diagnoses and procedures in the United States. The International Classification of Diseases, Tenth Revision (ICD-10) is used internationally.

M-CHATExternal Web Site Icon (Modified Checklist for Autism in Toddlers)
Download the M-CHAT, instructions and permissions for use, scoring instructions, and follow-up interview by clicking on the links below. The follow-up interview is designed to reduce the false positive rate (meaning children who fail the M-CHAT but are not likely to have an autism spectrum disorder).
Instructions and Permissions for using the M-CHAT Adobe PDF fileExternal Web Site Icon
M-CHAT Scoring Instructions Adobe PDF fileExternal Web Site Icon
M-CHAT Scoring Template Adobe PDF fileExternal Web Site Icon
M-CHAT Follow-up Interview Adobe PDF fileExternal Web Site Icon

Early Intervention
Act Early on Developmental Concerns: Partnering with Early InterventionExternal Web Site Icon
A presentation that offers health care providers a general overview of early intervention services as well as practical tips, resources, and tools for working with early intervention and community services from the American Academy of Pediatrics (AAP).

Developmental and Behavioral Pediatrics OnlineExternal Web Site Icon
Developmental and Behavioral Pediatrics Online is for professionals interested in child development and behavior in a medical setting. The website focuses on primary care development and behavior, including early intervention and screening, and provides articles, handouts, and materials about developmental disabilities developed for professionals and parents. It also offers a practice section with information to support primary and specialty health care practice.

Other Resources
Association of University Centers on DisabilitiesExternal Web Site Icon
The Association of University Centers on Disabilities is network of interdisciplinary centers advancing policy and practice for and with individuals with developmental and other disabilities, their families, and communities.

Health Resources and Services AdministrationExternal Web Site Icon
The Health Resources and Services Administration (HRSA), an agency of the Department of Health and Human Services, improves access to health care services for people who are uninsured, isolated, or medically vulnerable. HRSA provides leadership and financial support to health care providers in every state and U.S. territory.

National Center of Medical Home Initiatives for Children with Special NeedsExternal Web Site Icon
The National Center of Medical Home Initiatives for Children with Special Needs works with federal agencies to ensure that children with special needs have access to a medical home. Its website has resources, information, and tools on providing medical homes for children and youth with special health care needs.


Photo: 3 apples and a pencilAutism and Asperger Syndrome Educator’s Guides, Organization for Autism Research (OAR)External Web Site Icon
These guides provide teachers and other education professionals with a plan for teaching a child with autism or Asperger syndrome in the general classroom setting. In addition to these guides, OAR has other tips for educatorsExternal Web Site Icon on its website.

The Center on the Social and Emotional Foundations for Early Learning (CSEFEL)External Web Site Icon
CSEFEL is focused on promoting the social emotional development and school readiness of young children birth to age 5. They have user-friendly training materials, videos, and print resources which are available directly from this website to help early care, health and education providers implement this model.

The National Professional Development Center on Autism Spectrum DisordersExternal Web Site Icon
This organization strives to promote optimal development and learning of infants, children, and youth with ASD and provide support to their families through the use of evidence-based practices. They provide resources for educators that are evidence-based.

National Association for the Education of Young Children (NAEYC)External Web Site Icon
NAEYC provides accreditation for schools that meet certain standards, as well as resources, tools, and information for families and childcare providers.

National Association of Special Education Teachers
External Web Site Icon

The National Association of Special Education Teachers (NASET) has one of the largest sources of information on special education in the United States that teachers have identified as being the most relevant issues faced in the field. The NASET database is updated daily.

Teaching Tips for Children and Adults with AutismExternal Web Site Icon
The article "Teaching Tips for Children and Adults with Autism" by Temple Grandin has 28 tips to help teachers in fostering a classroom environment conducive to learning for children with autism. Dr. Grandin is an associate professor at Colorado State University and a well-known adult with autism.

Young Children with Challenging BehaviorExternal Web Site Icon
The Technical Assistance Center on Social Emotional Intervention for Young Children, also known as TACSEI, takes the research that shows which practices improve the social-emotional outcomes for young children with, or at risk for, delays or disabilities and creates free products and resources to help decision makers, caregivers, and service providers apply these best practices in the work they do every day.

Zero to ThreeExternal Web Site Icon
Provides professionals working with very young children and their families an extensive collection of resources aimed at supporting the work of professionals in a variety of early childhood settings.


Photo: magnify glassFederal Funding Opportunities
CDC’s National Center on Birth Defects and Developmental Disabilities Funding Opportunities
Find information about funding opportunities in CDC’s National Center on Birth Defects and Developmental Disabilities (NCBDDD). Information about new funding opportunities throughout CDC can be found on the CDC Grants and Cooperative Agreements webpage.

Grants.govExternal Web Site Icon helps organizations find and apply for more than $400 billion in federal grants electronically. It is the single access point for more than 1,000 grant programs offered by all federal grant-making agencies. The Department of Health and Human Services is the managing partner for

National Institutes of Health (NIH) Grants and FundingExternal Web Site Icon
Find grants and funding opportunities from NIH. You can also use NIH's new tool, the RePORT Expenditures and Results (RePORTER)External Web Site Icon query tool to learn about currently funded projects related to ASDs. This new tool replaces CRISP (Computer Retrieval of Information on Scientific Projects), but keeps all of the features of CRISP, including a searchable database of projects at colleges , hospitals, and other research facilities that are funded by NIH and other government agencies. The new RePORTER tool also has additional search tools, hit lists that can be sorted and downloaded to Excel, NIH funding for each project (expenditures), and the publications and patents that have acknowledged support from each project (results). RePORTER also provides links to PubMed CentralExternal Web Site Icon, PubMedExternal Web Site Icon, and the US Patent & Trademark Office Patent Full Text and Image DatabaseExternal Web Site Icon for more information on research results.

Public and Restricted-Use Data Sets
Autism Genetics Initiative Data ArchiveExternal Web Site Icon
The Human Genetics Initiative, funded by the National Institute of Mental Health, is a national resource of clinical data and biomaterials collected from people with autism and other mental disorders. The data and biomaterials in the Autism Genetics Initiative were collected as part of a genetic linkage study done in 1995–2001. Families in the initiative have at least two affected siblings or more distant relatives. Available data include age, sex, family structure, diagnostic interview data and status, and nonverbal IQ data. Data and biomaterialsExternal Web Site Icon (cell lines and DNA samples) are available to qualified investigators who study the genetics of autism.

Autism Genetics Resource ExchangeExternal Web Site Icon
The Autism Genetic Resource Exchange (AGRE) is a resource for the study of autism genetics. Clinical data and genetic material on more than 700 families are freely available for analysis by members of the scientific community. The goal of AGRE is to speed up progress in identifying the genetic underpinnings of autism and autism spectrum disorders by making this information available to the scientific community.

ClinicalTrials.govExternal Web Site Icon provides free and easy access to information on clinical studies for a wide range of diseases and conditions, including autism. Trials found on the website may be federally or privately funded.

Data Resource Center for Child and Adolescent HealthExternal Web Site Icon
The Data Resource Center makes it easy to find key findings on the health and health care of children, youth, and families. It is sponsored by the federal Maternal and Child Health Bureau and is led by the Child and Adolescent Health Measurement Initiative, based at the Oregon Health & Science University.

IDEAdata.orgExternal Web Site Icon provides public access to the most recent data about children with disabilities served under the Individuals with Disabilities Education Act (IDEA). These data are collected annually by the U.S. Department of Education, Office of Special Education Programs, in accordance with Section 618 of IDEA. They are provided in the form of tables produced for the Annual Reports to Congress.

National Center on Birth Defects and Developmental Disabilities
Data sets on developmental disabilities are available from CDC under restricted conditions because of concerns about confidentiality of study subjects. Information on how to request the measles, mumps, rubella/autism study data set can be found on the developmental disabilities website.

National Center for Education StatisticsExternal Web Site Icon
The National Center for Education Statistics, located within the U.S. Department of Education and the Institute of Education Sciences, is the primary federal entity for collecting and analyzing data about education.

National Center for Health Statistics
CDC’s National Center for Health Statistics (NCHS) has accurate, relevant, and timely statistics to guide actions and policies to improve the health of Americans. The NCHS State and Local Area Integrated Telephone Survey has in-depth state and local area data that can be used to help meet various program and policy needs.

National Database for Autism ResearchExternal Web Site Icon
The National Database for Autism Research, being developed by the National Institutes of Health, will provide a national resource to support and speed up research in autism. It is a collection of information systems supporting the full range of autism research activities, including genomic, imaging, laboratory, clinical, and behavioral data sources. It provides the core technology for a data warehouse, a data-entry system, and a centralized source for common measures and their documentation. It will support large-scale, multi-site projects as well as pilot studies and basic science investigations.

Human Subjects’ Protection
The Code of Federal Regulations, Title 45, Part 46External Web Site Icon, is the official federal policy about the protection of human subjects in research studies. Section 46.116External Web Site Icon addresses the general requirements for informed consent and identifies the circumstances under which a waiver of informed consent may be approved. You can find more human subjects resources on the CDC human subjects research website. The site includes checklists for writing research protocols and informed consent forms, descriptions of additional protections required if certain groups (such as children and pregnant women) will be research subjects, guidelines for defining public health research versus non-research, and general resources on human subjects issues. The site supports CDC staff and staff on CDC-funded projects to ensure compliance with federal policy on human subjects’ protection.

Additional Resources of Interest
NIH Loan Repayment ProgramsExternal Web Site Icon
The National Institutes of Health offers several loan repayment programs for researchers. NIH Loan Repayment Programs are a vital component of our nation's efforts to attract health professionals to careers in clinical, pediatric, health disparity, or contraceptive and infertility research.

Adults with Autism

Advancing Futures for Adults with AutismExternal Web Site IconAdvancing Futures for Adults with Autism offers a resources webpage.

Autism SpeaksExternal Web Site Icon
Autism Speaks provides an Adults with Autism resource list. External Web Site Icon

The Autism Speaks Transition Tool KitExternal Web Site Icon serves as a guide to assist families on the journey from adolescence to adulthood.

Autism SocietyExternal Web Site Icon 
Visit the Autism Society’s Adulthood webpage for helpful information.

Autistic Self Advocacy NetworkExternal Web Site Icon 
The Autistic Self Advocacy Network (ASAN) is a non-profit organization run by and for people with autism. ASAN was created to provide support and services to individuals on the autism spectrum while working to educate communities and improve public perceptions of autism.

CDC’s Disability and Health Program 
To be healthy, people with disabilities require health care that meets their needs as a whole person, not just as a person with a disability. Most people with or without disabilities can stay healthy by learning about and living healthy lifestyles. This webpage provides tips on how to do so.

Easter SealsExternal Web Site Icon 
Autism services for adults and tips on finding a job, moving away from home, and making friends.

National Dissemination Center for Children with Disabilities (NICHCY)External Web Site Icon 
NICHCY’s website offers information on services for adults with disabilities.

Organization for Autism Research (OAR)External Web Site Icon 
OAR has provided a Guide for Transition to Adulthood (downloadable).

National Autism Resource & Information CenterExternal Web Site Icon 
Visit the National Autism Resource and Information Center for resources and helpful information for adults.

Other Federal Resources

Photo: Mother hiking with childInteragency Autism Coordinating CommitteeExternal Web Site Icon
The Interagency Autism Coordinating Committee (IACC) coordinates all efforts within the Department of Health and Human Services (HHS) concerning autism spectrum disorder (ASD). Through its inclusion of both Federal and public members, the IACC helps to ensure that a wide range of ideas and perspectives are represented and discussed in a public forum.

National Institutes of HealthExternal Web Site Icon
The National Institutes of Health (NIH) conducts and funds studies to improve the health of all people. The Autism Centers of Excellence (ACE)External Web Site Icon Program is a trans-NIH initiative that supports large-scale multidisciplinary studies on autism spectrum disorder with the goal of determining the disorder's causes and the best treatments for them. NIH has developed a National Database for Autism Research (NDAR)External Web Site Icon to support and accelerate research in autism. This resource highlights existing research and information about autism spectrum disorder and encourages new research by allowing greater access to data.

National Center for Complementary and Alternative Medicine (NCCAM)External Web Site Icon
NCCAM is the lead agency for scientific research on complementary and alternative medicine.

National Institute of Child Health and Human Development (NICHD)External Web Site Icon
NICHD studies growth and development, including disabilities such as autism.

National Institute on Deafness and Other Communication Disorders (NIDCD)External Web Site Icon
NIDCD does research related to hearing, balance, smell, taste, voice, speech, and language. It studies medical and behavioral problems in people with communication problems, including those with autism spectrum disordersExternal Web Site Icon, and works to promote health in these people. NIDCD, along with NICHD, funds the Collaborative Programs of Excellence in AutismExternal Web Site Icon.

National Institute of Environmental Health Sciences (NIEHS)External Web Site Icon
NIEHS works to understand how the environment affects health. NIEHS and the Environmental Protection Agency (EPA) fund children's environmental health research centers to study possible links between the environment and children's health. Some of the centers focus on autism.

National Institute of Mental Health (NIMH)External Web Site Icon
NIMH is the lead agency on the Interagency Autism Coordinating Committee, which coordinates ASD-related activities in the Department of Health and Human Services.

National Institutes of Health Autism Coordinating Committee (NIH/ACC)External Web Site Icon
The NIH/ACC coordinates ASD-related activities among the NIH institutes listed above. In 2001, NIH/ACC funded several universities to research treatments for ASD. The committee also wants to find biological markers or medical tests that can tell if a person has an ASD.


We provide links to other web pages if you want to learn even more about a topic. Some of these pages are on the CDC website and others are on outside websites. Links to organizations outside of CDC are included for information only. CDC has no control over the information at these sites. The views and opinions of these organizations are not necessarily those of CDC, the Department of Health and Human Services (HHS), or the U.S. Public Health Service (PHS).

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