Data Sharing
Data Sharing: Genomics & Precision Medicine - April 14, 2014
Shared resources, shared costs-leveraging biocuration resources.
Orchard S et al. Database (Oxford) 2015
Orchard S et al. Database (Oxford) 2015
From the principles of genomic data sharing to the practices of data access committees.
Shabani M et al. EMBO Mol Med 2015 Mar 9.
Shabani M et al. EMBO Mol Med 2015 Mar 9.
Stakeholders' perspectives on biobank-based genomic research: systematic review of the literature.
Husedzinovic A et al. Eur. J. Hum. Genet. 2015 Mar 4.
Husedzinovic A et al. Eur. J. Hum. Genet. 2015 Mar 4.
Development of data representation standards by the human proteome organization proteomics standards initiative.
Deutsch EW et al. J Am Med Inform Assoc 2015 Feb 28.
Deutsch EW et al. J Am Med Inform Assoc 2015 Feb 28.
NIH's genomic data sharing policy: timing and tradeoffs.
Contreras J L et al. Trends Genet. 2015 Feb (2) 55-7
Contreras J L et al. Trends Genet. 2015 Feb (2) 55-7
Does policy grow on trees?
Knoppers BM et al. BMC Med Ethics 2014 87
Knoppers BM et al. BMC Med Ethics 2014 87
More on Genomic Data Sharing: Recent Insights - October 9, 2014
NIH issues finalized policy on genomic data sharing. Policy's implementation is key to accelerating biomedical discoveries, NIH News, Aug 27
NIH News, Aug 27
Data use under the NIH GWAS data sharing policy and future directions
Dina N Paltoo, et al. Nature, August 27, 2014
Dina N Paltoo, et al. Nature, August 27, 2014
The need to redefine genomic data sharing: A focus on data accessibility
Tempest van Schaik, et al. Applied and Translational Genomics, September 2014
Tempest van Schaik, et al. Applied and Translational Genomics, September 2014
Distributing the future: The weak justifications for keeping human genomic databases secret and the challenges and opportunities in reverse engineering them.
Misha Angrist and Robert Cook-Deegan. Applied and Translational Genomics, September 2014
Misha Angrist and Robert Cook-Deegan. Applied and Translational Genomics, September 2014
Unpublished genomic data–how to share?
Shreeya Nanda and Maria K Kowalczuk BMC Genomics (2014)
Shreeya Nanda and Maria K Kowalczuk BMC Genomics (2014)
A human rights approach to an international code of conduct for genomic and clinical data sharing
Knoppers B, et al. Hum Genet 2014 Feb 16
Knoppers B, et al. Hum Genet 2014 Feb 16
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