sábado, 10 de enero de 2026
Starting 2026 with impact. RARE and undiagnosed, Issue 034 is out NOW!
https://rarerevolutionmagazine.com/
Bringing to life stories and experiences from the undiagnosed world
We are delighted to launch our newest edition—RARE and undiagnosed, which is proudly supported with joint funding from Illumina, UCB Pharma Limited and Oxford Nanopore Technologies
Featuring:
RARE inspiration—Dr Gareth Baynam, Rare Care Centre, Perth, Australia, the architect of equitable health innovation in Western Australia
Medical spotlight—Professor Aimé Lumaka Zola, University of Kinshasa, Democratic Republic of Congo shares the logistics required to drive diagnostic progress in the region
Charity spotlight—Helene Cederroth, founder and CEO, Wilhelm Foundation shares how their globally collaborative efforts are aiding the search for answers for the undiagnosed community
Valuable insights from individuals, organisations and advocates—from the legal impact for families facing miscarriages of justice and accusations of child abuse, to the families who have been forced to take extraordinary measures in pursuit of answers
Research and innovation—the pioneers in industry and advocacy who are helping to redefine what a diagnosis means and leverage cutting edge tools to help us get there with greater accuracy and speed
International news and book reviews
You can view this publication from a desktop, laptop, mobile or tablet and it is packed with interactive links so you can enjoy the best possible experience when engaging with the content. And don't forget you can also view from our website at any time along with lots of other great digital content.
https://editions.rarerevolutionmagazine.com/html5/reader/production/default.aspx?pubname=&edid=5fddfc62-9dc6-47bf-aa6a-922d41bce312
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