New Staging Tool Available for Healthcare Providers Treating Patients With CTCL by CheckRare Staff| ++ ++++

FEATURED ARTICLES New Staging Tool Available for Healthcare Providers Treating Patients With CTCL https://checkrare.com/new-staging-tool-available-for-healthcare-providers-treating-patients-with-ctcl/ Pamela Blair Allen, MD, MSc, Hematologist, discusses the new CTCL Staging Tool on PROBEinCTCL.com. A New Test for Patient-Reporting of Mastocytosis Control https://checkrare.com/a-new-test-for-patient-reporting-of-mastocytosis-control/ A team of allergists, immunologists, and dermatologists sought to test a new patient-reported outcomes measure for assessing mastocytosis disease control. Their newly developed tool, called the Mastocytosis Control Test (MCT), was generated through interviews with adult patients with nonadvanced indolent systemic mastocytosis. CLINICAL PERSPECTIVES Ongoing Phase 3 Study of Paltusotine in Carcinoid Syndrome Due to Neuroendocrine Tumors https://checkrare.com/ongoing-phase-3-study-of-paltusotine-in-carcinoid-syndrome-due-to-neuroendocrine-tumors/ Aman Chauhan, MD, Oncologist at the University of Miami, discusses details of a phase 3 study testing paltusotine in patients with carcinoid syndrome due to neuroendocrine tumors (NETs). Results From the DeFi Clinical Trial of Nirogacestat in Patients With Desmoid Tumors https://checkrare.com/results-from-the-defi-clinical-trial-of-nirogacestat-in-patients-with-desmoid-tumors/ Bernd Kasper, MD, PhD, University of Heidelberg Cancer Center, discusses results from the DeFi clinical trial of nirogacestat in patients with desmoid tumors. Long-Term Analysis of Pimicotinib for the Treatment of Patients With TGCT https://checkrare.com/long-term-analysis-of-pimicotinib-for-the-treatment-of-patients-with-tgct/ Xiaohui Niu, Director of the Bone and Soft Tissue Tumour Diagnosis and Research Centre at Beijing Jishuitan Hospital, discusses a long-term analysis of the MANEUVER clinical trial of pimicotinib for the treatment of patients with tenosynovial giant cell tumor (TGCT). Lynch Syndrome: A Patient’s Experience With Genetic Testing and Increased Risk of Cancer https://checkrare.com/lynch-syndrome-a-patients-experience-with-genetic-testing-and-increased-risk-of-cancer/ Tiffany Graham Charkosky, author and patient with Lynch syndrome, discusses her experience with genetic testing and her book LIVING PROOF: How Love Defied Genetic Legacy.