Joining the Dots: EURORDIS’ role in ERDERA and the reshaping of rare disease research December 2025

https://www.eurordis.org/role-in-erdera-and-reshaping-rare-disease-research/ In September 2024, Europe took an important step towards a more coordinated rare disease research ecosystem with the launch of the European Rare Diseases Research Alliance (ERDERA) – which brings together 178 organisations from 37 countries. https://erdera.org/ For the 30 million people living with a rare disease, ERDERA is shaping this transformation: aligning with and fostering increased international efforts through National Mirror Groups, guiding ATMP prioritisation, and building a research-ready advocacy movement through the EURORDIS Open Academy. Our latest article explains how EURORDIS is contributing to ERDERA and how those contributions are helping shape the partnership's development.