High-Level Meeting

https://www.brains4brain.eu/eu-activities-polices/hlm-rare/ High-Level Meeting A High-Level Meeting on European Research and Innovation for Rare Diseases is currently being hosted in Brussels, from 9 to 11 December, bringing together policymakers, advocates, researchers, health professionals and industry leaders to discuss a Declaration on innovation in rare diseases. Yesterday, our Acting Chief Executive Officer Virginie Hivert spoke about EU leadership in clinical trials and on building infrastructure clusters for research, innovation and care. With our President Avril Daly speaking tomorrow, you can follow the discussions live. https://www.linkedin.com/posts/eurordis_hlmrare2025-rarediseases-europe-activity-7404211982452621313-MqNR/?utm_source=share&utm_medium=member_desktop&rcm=ACoAAEFssY0B6lP2nVdC8HjjakiRq6CO7UzKocQ Join us for a high-level, three-day meeting dedicated to forging a robust research & innovation ecosystem for rare diseases in the EU. This event will gather key stakeholders — including EU policymakers, industry leaders, patient advocacy groups, researchers, and healthcare providers — to identify concrete actions and incentives to enhance innovation across the rare disease ecosystem. By involving all actors in the development, approval, and access to new therapies, we aim to establish a predictable regulatory pathway, ensuring that the benefits of scientific advancements reach all European citizens, particularly those often left behind. A central goal of the HLM Rare will be advocating for the EU’s adoption of a European Declaration on Rare and Complex Diseases, aiming to establish a sustainable Research and Innovation Ecosystem that ensures continuous dialogue and collaboration among all stakeholders.