RARE Round-up - keeping you up-to-date

https://editions.rarerevolutionmagazine.com/html5/reader/production/default.aspx?pubname=&edid=d32456c6-3976-4478-b801-e093ee1f0d4e We are delighted to introduce our Summer 2025 edition of RARE Revolution Magazine, proudly supported by Sarepta Therapeutics, this edition serves to inform and engage our global audience on the topic of rare neuromuscular disorders—giving a voice to the diverse experiences, through both the highs and the lows of life with NMDs. The field of rare neuromuscular disorders is one of extremes. For many a rare neuromuscular diagnosis is nothing short of devastating—families watch this cruel group of disorders rob their loved ones of quality of life, and individuals directly affected must adjust to the, at times, catastrophic impact of living with a disease that is typically progressive by nature. As I introduce this edition, it is also important to acknowledge the unprecedented backdrop that the scientific community is operating within which has seen a period of great uncertainty over the last two years. My hope is that this edition serves to inform and engage our global audience on the topic of rare neuromuscular disorders, and that it leaves those families directly affected feeling seen and heard—giving a voice to their diverse experiences, through both the highs and the lows of life with NMDs.