miércoles, 18 de junio de 2025

Living with the Invisible: My Journey with Osteogenesis Imperfecta and Chronic Pain

https://www.eurordis.org/living-with-the-invisible/ Mental health In our latest mental health testimony, Alessandra Tolaccia shares her powerful journey with osteogenesis imperfecta (OI) and chronic pain. She reflects on misdiagnosis, invisible symptoms, and the emotional toll of not being believed – and why breaking the silence around pain is essential to changing the future for people with OI.

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