RARE Revolution RARE Bite

https://editions.rarerevolutionmagazine.com/html5/reader/production/default.aspx?pubname=&edid=7dff7463-ab1c-41ec-978b-d13d7299390a&pnum=8 Jess Hobart’s early experience of engaging in her personal health story was one largely of being dismissed. However, an interaction with a passionate specialist changed that—giving her both a confirmed diagnosis of systemic Mastocytosis and a lesson in the power derived from access to information. Now as a leader within The UK Mastocytosis Support Group, Jess has channelled her unique personal insights to drive research, educate healthcare providers and empower patients to advocate for the comprehensive support they deserve.