miércoles, 12 de febrero de 2025
Empowering Lives Uniting Voices
https://www.ehc.eu/
Von Willebrand Disease Awareness Day
On 1 February, the European Haemophilia Consortium (EHC) marked Von Willebrand Disease (VWD) Awareness Day, highlighting the challenges of this often overlooked bleeding disorder. Under the theme 'Making the Invisible Visible,' the campaign focused on diagnosis gaps, particularly for women. EHC and ERN-EuroBloodNet also released a playlist of expert-led videos on VWD, available on YouTube. You can register for their next online webinar, on 13 February, which explores the emotional impact of VWD.
https://www.youtube.com/playlist?list=PL-oiIvBt-bQf83yVb2RY3IuwBi2A5h43s
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