Imperfect JOY: Capturing the Lives of Patients With Rare Diseases By: Madaline Spencer| // Addressing Mental Health in Patients with Rare Diseases By: Madaline Spencer| // Addressing Unmet Needs in Rare Diseases By: Madaline Spencer| // Undiagnosed Diseases Network Foundation: Providing Resources and Support for Undiagnosed Community By: Madaline Spencer| // ++++

Imperfect JOY: Capturing the Lives of Patients With Rare Diseases https://checkrare.com/imperfect-joy-capturing-the-lives-of-patients-with-rare-diseases/ Melody Joy Paine, founder of Imperfect JOY, discusses how she captures the lies of patients with rare diseases through photography and filmmaking. Addressing Mental Health in Patients with Rare Diseases https://checkrare.com/addressing-mental-health-in-patients-with-rare-diseases/ David Gusick, Founder of Somebody To Talk To, discusses mental health in patients with rare diseases. Addressing Unmet Needs in Rare Diseases https://checkrare.com/addressing-unmet-needs-in-rare-diseases/ Cathleen Lutz, PhD, Vice President of the Rare Disease Translational Center at The Jackson Laboratory (JAX), discusses how the laboratory is addressing unmet needs in rare diseases. Undiagnosed Diseases Network Foundation: Providing Resources and Support for Undiagnosed Community https://checkrare.com/undiagnosed-diseases-network-foundation-providing-resources-and-support-for-undiagnosed-community/ Amy Gray, Chief Executive Officer of the Undiagnosed Diseases Network Foundation (UDNF), discusses the organization and what they do for patients of undiagnosed rare diseases.