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Compelling videos from the rare disease community on EURORDIS TV Charlie Bear This documentary tells the story of Charlie Lewis, a young boy with Smith-Magenis syndrome - a rare developmental disorder

Charlie Bear

Charlie Bear documents the story of Charlie Lewis, a young boy with Smith-Magenis Syndrome - a very rare developmental disorder that affects approximately one in 25,000 - and his parents Kim and Dave Lewis.

For the 2013 festival, ffresh teamed up with The Co-operative Cymru/Wales to produce a short film competition to find young filmmakers to create 2 factual short films that reflect the people, communities, and culture of Wrexham...(more)