viernes, 20 de marzo de 2026

Podcast: Rare on Air

https://www.eurordis.org/rare-on-air/ Rare Disease Day bonus series Listen to the final episodes from our bonus podcast series Rare on Air Stories, which highlight powerful lived experiences from people impacted by rare diseases worldwide. In the latest episode, Stephanie shares her journey as a parent navigating her daughter's rare condition, with determination and strength. Ren reflects on living with an extremely rare disease, and how sharing her experience has helped her build connection and support

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